Genomic & genetic research and racialized communities with Arafaat Valiani
Episode 120 - January 11, 2023
Arafaat Valiani (University of Oregon) has a conversation with the Infectious Historians about genomic and genetic research with racialized communities. Arafaat goes over what is genomic research, then describes how tests work and the bioethical debate surrounding them. He describes some of the different approaches among biomedical researchers that approach marginalized communities. The conversation moves on to discuss some of the practicalities of working with and within these communities, followed by a reflection about whether other communities should adopt similar practices as well. The interview finishes with a discussion of the role of AI within genomic research.
Further Reading
- Clarke, Adele. E., Shim, J. K., Mamo, L., Fosket, J. R., & Fishman, J. R. (2010). Biomedicalization: Technoscience, health, and illness in the US, 47-87.
- Harding, S. (2011). The postcolonial science and technology studies reader, Duke University Press.
- Mukharji, Projit Bihari. (2023). Brown Skins, White Coats: Race Science in India, 1920-66. University of Chicago Press.
- Neumark, Tom. (2020). "The hype and hope of data for healthcare in Africa". Somatosphere (blog).
- Valiani, Arafaat A. (2022). "Frontiers of Bio-Decolonization: Indigenous Data Sovereignty as a Possible Model for Community-Based Participatory Genomic Health Research for Racialized Peoples in Postgenomic Canada." Genealogy 6 (3).
Our Guests
Arafaat Valiani
Associate Professor – Department of History – University of Oregon.